Lupus Hair Loss

Hair loss can be one of the first symptoms of lupus. But lupus is a notoriously difficult condition to diagnose – and the ways in which it can lead to hair loss are varied.

On this page I'll take a look at exactly what lupus is, what the most common symptoms are, the types of hair loss it can cause, and how it is treated.

Note: this information is given for guidance purposes only and does NOT constitute medical advice. You should always discuss any concerns you have regarding your health with a qualified medical professional.

What Is Lupus?

Lupus is an autoimmune disease.

Ordinarily, the immune system protects us from germs, bacteria and viruses by producing antibodies. With an autoimmune condition, your body cannot tell the difference between these unwelcome invaders and your own healthy tissues. So the immune system starts making antibodies that attack your tissues.

This causes a variety of symptoms, including pain, inflammation and tissue damage.

There are various kinds of lupus.

• Systemic lupus erythematosus (SLE) is the most common type and affects multiple organs in the body.
  
  
• Subacute cutaneous erythematosus causes inflammation and sores on skin that is exposed to the sun.
  
  
• Discoid lupus erythematosus causes a chronic rash on the skin.
  
  
• Drug induced lupus can be triggered by certain medications.

Cutaneous and discoid lupus do not affect the health of any bodily organs beside the skin. Skin lupus does not necessarily progress into SLE, with only around 10% of sufferers later developing lupus in other organ systems.

How Is Lupus Diagnosed?

Unfortunately, lupus is one of those diseases that difficult to diagnose because there is no one test that can tell doctors conclusively whether or not you have it.

This means that some people go a long time without finding out just what's wrong with them, or receiving the treatment they need.

There are "11 Criteria of Lupus" devised by the American College of Rheumatology that doctors use to help them diagnose the condition.

To decide whether or not someone has lupus, doctors look for at least 4 of the criteria to be present.

These are:

• A malar rash (a rash across the nose and cheeks which is shaped like a butterfly)
  
  
• A discoid rash (scaly, raised, red patches on the skin)
  
  
• Sensitivity to sunlight, resulting in a rash
  
  
• Ulcers around the nose or mouth
  
  
• Arthritis in at least 2 joints
  
  
• Indication of inflammation of the lining around the lungs or the heart
  
  
• Psychosis or seizures
  
  
• Excessive protein in the urine, indicating a kidney disorder
  
  
• Disorders of the blood
  
  
• The presence of antinuclear bodies (determined by an ANA test)
  
  
• Other disorders of the immune system

Who Gets Lupus and What Causes It?

Lupus most affects young women and often starts somewhere between the ages of 15 and 44. It affects women of Asian, Latino, African American and Native American descent more than Caucasian.

It is not always possible to pinpoint the cause, though in a few cases it is triggered by medication and in around 10% of cases it's hereditary.

Lupus is NOT contagious.

How Is Lupus Treated?

Because it's such a complex condition, treatment for lupus varies quite a bit from person to person.

It's usually treated with steroids, which can control inflammation, and immunosuppressives, to limit the activity of the immune system.

As I mentioned earlier, hair loss can be an unfortunate side-effect of these medications.

Lupus Hair Loss – Will It Grow Back?

Because there are different causes of the hair loss, the answer to this question is 'it depends'.

Systemic lupus tends to cause 'flares' – in other words, there are times when the symptoms are worse than others. During these flares, the hair loss can be heartbreakingly dramatic.

But the good news is that hair often grows back once treatment is received, although it can be up to 6 months before things really seem back to normal.

With skin lupus, the hair loss can be permanent if the hair follicles themselves have been scarred. This is why it's so important to seek immediate treatment if a rash is present.

If your hair loss is caused by the lupus medication (or other medication), the hair will usually grow back when the medication is stopped.

How to Prevent Lupus Hair Loss

Seek immediate advice from your doctor if you notice a rash developing. Early treatment can prevent scarring.

Speak to your doctor about altering your dosage or changing your medication if it seems that the medication is causing your hair loss. Do bear in mind, though, that your doctor may not recommend this until your lupus is well under control.

Try to avoid 'flares' of systemic lupus by avoiding your 'triggers'. It's a good idea to keep a diary to help you work out what your triggers may be.

• Try to keep your stress levels low.
• Avoid the sun, especially between 10 and 4 PM
• Get plenty of rest.
• Avoid exposure to halogen lights or fluorescent lights.
• Make sure any infections are treated promptly.

Don't necessarily assume your hair loss is related to your lupus.

Hair loss has lots of other causes – please see this page for more information.

How to Disguise Your Hair Loss and Look after Fragile Hair

• Consider a shorter hairstyle, so the weight of your hair does not flatten your roots against your scalp (which makes the bald patches more obvious).
  
  
• Color your hair so it is lighter, creating less of a contrast between dark hair and a pale scalp. (This may not be suitable for everyone, particularly if the hair is very fragile).

• Use a product designed to make the hair looks thicker. TOPPIK Hair Building Fibers, Light Brown, 0.97 oz. and XFusion Keratin Hair Fibers are both hugely popular, effective and easy to use.

• Consider hair extensions, a 'topper', or partial wig if the hair loss is severe. Avoid any hair pieces that need chemicals or glue to attach them.
  
  
• Decorate your hair with trendy hair wraps, scarves or bandanas. Type 'how to tie a head scarf' into Youtube and you'll find masses of video tutorials to help you discover a look that suits YOU.
  
  
• Use a hair volumizer to add some 'bounce'. I also find that dry shampoo is great for adding a little volume.
  
  
• Look after fragile hair by avoiding heat as much as possible and using a gentle shampoo. These hair loss shampoos contain many nourishing ingredients that are kind to the hair.
  
  
• Considering taking biotin supplements, which some women find helpful and are occasionally recommended by dermatologists. Saw palmetto is another popular remedy. Please remember to speak to your doctor before taking any supplements.
  
  
• Eat foods known to encourage healthy hair growth (you'll find lots listed here).

• Invest in silk or satin pillowcases which are very gentle to the hair and help prevent breakage (there are said to prevent wrinkles too!).


• Use organic, unrefined coconut oil to soften brittle hair. It's one of the few oils scientifically proven to actually penetrate the hair shaft shaft.

• Avoid over-the-counter hair loss treatments or at least check with your doctor before using them. They are not always recommended for lupus sufferers.
  
  
  
• If your hair loss is caused by scarring and likely to be permanent, some experts recommend waiting until your lupus is very well-managed before undergoing such a procedure, as a hair transplant itself can reactivate lupus or trigger a flare. See your doctor for guidance on this.
  
  
• Keep brittle hair hydrated! I'm a big fan of humidifiers and use one myself for this reason (read more here).

Sources and for more information...

Lupus Research Alliance

National Institute of Arthritis and Musculoskeletal and Skin Diseases

I hope you have found this lupus hair loss page useful. If you suffer from lupus and can offer advice to other women experiencing hair loss, please do contact me here.